THE WHYNOTDEVIN FOUNDATION TO END DIPG
Supporting families battling Diffuse Intrinsic Pontine Glioma
At The WhyNotDevin Foundation to End DIPG, our goal is to help alleviate a part of the enormous financial burden this diagnosis carries for families. Learn more about what we do, how you can help, and how we can all benefit from acts of kindness.
This is Devin Suau. At six years old, after falling off his snowboard in January 2017 and seeing a doctor about a possible concussion, was diagnosed with Diffuse Intrinsic Pontine Glioma (DIPG). DIPG is a rare pediatric cancer that is aggressive and unforgiving. The tumor is located in the brain stem, and tragically, because of its location, it is inoperable and has no known cure. Devin's family was told that he had just eight months to two years to live. The news was crippling to Devin's family, but they knew, someone would have to be the first to beat DIPG-
Why Not Devin?
Devin was the youngest of four brothers. They loved each other in a way that was inspiring to everyone they met. At such a young age, Devin could light up a room with his contagious laugh and brighten your day with his amazing smile and quick wit.
DIPG, because of its rarity, gets very little funding, research, or backing from the medical community. That has to change! Our children deserve a chance to grow up. On October 20, 2017 just shy of nine months following his DIPG diagnosis, and just one week before what would have been his 7th birthday, Devin lost his battle with DIPG. The world lost a superhero, and a family lost their baby.
In 2020, in Devin's honor, The WhyNotDevin Foundation to End DIPG was formed as a 501c3. With a mission of aiding and supporting families facing a DIPG diagnosis. The WhyNotDevin Foundation to End DIPG provides resources and financial grants to give every child facing DIPG a fighting chance. Together, we will ensure DIPG doesn't steal another child from their family and their future.
WAYS WE HELP
The WhyNotDevin Foundation to End DIPG mission is to help families with a child diagnosed with Diffuse Intrinsic Pontine Glioma, both financially and emotionally. We also take an active roll in spreading awareness for a "rare" disease that gets little to no funding.
ACTS OF KINDNESS
We love acts of kindness!! In Devin's honor and memory do something kind for someone else.
The WhyNotDevin Foundation to End DIPG holds events to raise money to help families battling DIPG, to create awareness and to bring communities together.
”The greatness of a community is most accurately measured by the compassionate actions of its members.”
Coretta Scott King